The Huxman Run 2 Sweat will be Oct. 1 in Moundridge.


The Huxman Run 2 Sweat will be Oct. 1 in Moundridge.

There will be a one-mile run/walk, a 5,000-meter run/walk and a 10,000-meter run/walk.

The event benefits the National Foundation for Ectodermal Dysplasias.

The event is being organized by Chris and DeAnn Huxman of Moundridge, who have two sons who were born with Ectrodactyly Ectodermal Dysplasia Clefting Syndrome (EEC Syndrome).

“We are Chris and DeAnn Huxman from Moundridge, and 10 years ago we embarked on a journey we were not expecting and had no idea where it would take us when our second son, Tyler, was born with Ectrodactyly Ectodermal Dysplasia Clefting Syndrome (EEC Syndrome),” the Huxmans said in a release. “We had no idea what this was and what path we were headed down. Then, eight years later, we were informed we would be heading down the same path again when our fourth son Grant was born with the same syndrome. We were not expecting this again since we'd been told there was no greater chance for us to have another child with EEC than any other person and we had two children that were not affected.

“Luckily, through all of this we've become familiar with an organization called the National Foundation for Ectodermal Dysplasias (NFED), based out of Mascoutah, Ill., a small town about 30 minutes south east of St. Louis. This organization has been vital in helping us be informed about medical issues we face, resources for care, and networking with other families with similar stories.”

More information about the events are at www.firstgiving.com/fundraiser/deannhuxman/huxmanrun2sweat. More information about the NFED is at www.nfed.org.